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I am the first to admit that as a parent of a child with Epilepsy, I am still trying to understand what it is. I know I will never know how it feels for Finley when he has a seizure and as he is non-verbal, he can't tell me and that makes me feel helpless at times. I think that's how most people witnessing a seizure feel. It can be scary.
Since being diagnosed, he has been on medication - the first one didn't work completely for him but we are now combining two medicines and fingers crossed, it seems to be controlling his seizures at the moment. I still feel fearful though, every time I put him to bed. Out of all his disabilities, this is the most frightening diagnosis and it really can happen to anyone, of any age.
There are different types of seizures associated with Epilepsy. The most common one that comes to mind when people mention the word Epilepsy is a 'Tonic-Clonic Seizure.' This type of seizure involves the person going stiff, losing consciousness, resulting in them falling to the floor and convulsing. They may also go blue around the mouth, lose bladder or bowel control and bite their tongue. Here are some tips from Epilepsy Action on how to help someone having a Tonic Clonic Seizure:
When to call for an ambulance:
Although suffering with Epilepsy can feel quite solitary, there are some great support networks out there for those suffering with Epilepsy and for parents and carers too. Here are just a few that can give some guidance, reassurance and educate people about Epilepsy:
You can also raise awareness to others that you have Epilepsy. Wear or affix the tag to a bag. Available from the online store
Please don't suffer alone.